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Neurofibromatosis Warriors and Heroes
Living with Neurofibromatosis can be challenging.
While there may be similarities in symptoms people with Neurofibromatosis have, each individual has their own story. Below are some stories, videos, and media clips of NeurofibromatosisON’s own Neurofibromatosis Warriors and Heroes. We are always looking for new stories about our Neurofibromatosis Warriors and Heroes. If you have a story a personal story you would like to share, or will be in any upcoming media interviews.
Please let us know and we can help promote the event on our website and through our social media channels.
Nicole Porlier
Nicole an Neurofibromatosis Ontariomember has written a memoir about growing up with Neurofibromatosis called “Bumpy Roads Have Soft Shoulders”.
More about her book and how you to purchase it.
Scott Dougherty
Scott shares his Neurofibromatosis story with Niagara the Week.
John Huynh
Abilities recently republished an article original featured in the Canadian Skin Patient Alliance that had a highlight on Neurofibromatosis.
