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What We Do
We offer support...
- We network with doctors versed in Neurofibromatosis and Neurofibromatosis clinics throughout the province and beyond
- We are working with volunteers throughout Ontario to develop support groups
- We recently created a member registry where we connect people wanting support in their vicinity
- We provide information to the medical community, teachers, the media, the public and newly diagnosed patients, their families and friends
We can connect...
- We have a provincial toll free number for inquiries (866) 843-6376 as well as email info@nfon.ca
- We provide opportunities for children and youth with Neurofibromatosis to get together to have fun and meet others facing similar health concerns
- We have annual meetings with guest speakers relevant to various aspects of Neurofibromatosis. We offer updated information, fascilitate networking with others challenged by Neurofibromatosis ,fund raise and provide awareness materials
- We have had some family picnics and hope to begin doing more
- We publish a newsletter at least once per year
- We have books and pamphlets dealing with Neurofibromatosis available upon request and/or links to good online printable resources
We Research...
- We raise money for Neurofibromatosis research
- We have an array of fund raising and awareness events including online auctions, silent auctions, raffles, book and bake sales, members involved in marathons, Neurofibromatosis info booths at organized functions, etc…
- We share research updates with members regularly
